Deciding with Children in Pediatrics: Childrens Participation in Healthcare Decision-Making

Deciding with Children in Pediatric Healthcare: Children's Participation in Healthcare Decision-Making provides both the ethical underpinning and practical strategies to meaningfully involve children in decisions that affect their healthcare. The book assists clinicians in bringing the perspectives and values of the child forward so that their preferences can be meaningfully incorporated into decision-making, or appropriately justified when this is not possible. This is to both improve healthcare delivery and serve the best interests of children-now and as ongoing decision-makers in the future. The book begins by reviewing theories underpinning the concept of then presents models for making healthcare decisions with children. Further, clinicians and ethicists come together to demonstrate how to include children in specific cases that cover multiple clinical areas as well as child ages and developments stages. The book concludes with a review of questions, concerns, and challenges. Presents ethical, legal, and human rights support for involving children in healthcare decisionsProvides practical tools to help clinicians decide with childrenClarifies the limits of involving children in their healthcare INDICE: PART A: WHY DECIDE WITH CHILDREN? THEORIES UNDERPINNING THE CONCEPT. WAYS OF DOING IT- PAST AND PRESENT 1. Ethical Theory and Grounding 2. Neurological and Psychosocial Development 3. Limitations in Current Approaches to Understanding the Role of Children and Adolescents in Healthcare Decision-making PART B: DEVELOPING A MODEL FOR DECIDING WITH CHILDREN 4. Evolution from Infant to Young Adult- Pas de Deux to Pas de Trois, Involving the Child in Shared Decision-making 5. Deciding with Children: What is the Evidence? What is the Research Telling Us? 6. Pushing Back against Deciding with Children PART C: PRACTICAL ASPECTS OF DECIDING WITH CHILDREN 7. Decision-making with Young Children (Including Those with Autistic Spectrum Disorder) 8. Decision-making with Adolescents 9. Deciding with Children When the Stakes are High (Oncology) 10. Deciding with Children - Beyond Disability 11. Deciding with Children - Surgery 12. Deciding with Children Who Know More Than You - Chronic Disease (CF T1DM) 13. Giving Voice: Allied Health as Supporters of Children’s Decision-making 14. Giving Voice when No-one is Listening. The Role for Nurses in Deciding with Children PART D: QUESTIONS, CONCERNS AND CHALLENGES 15. Conclusion

• ISBN: 978-0-443-22323-5
• Editorial: Academic Press
• Encuadernacion: Rústica
• Páginas: 250
• Fecha Publicación: 04/11/2024
• Nº Volúmenes: 1
• Idioma: Inglés